Glossary

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z |

 

A

Administrative data: data collected in the course of providing and/or paying for services (e.g. hospital admissions, physician payment information)

 


B

BioBank: a dedicated institution preserving biological samples (e.g., spit, blood). These samples are usually used for research, such as at the BC Children’s and Women’s Hospital.

Biometric data: data regarding the physical descriptors of an individual (e.g., fingerprints, retina scans)


C

Clinical data: more detailed information about specific aspects of persons, conditions and/or care (e.g. blood pressure, weight, lab results)


D

Data: individual facts, statistics, or items of informationthat can be collected or quantified

Data access request: these requests are usually submitted to data stewards to request access to data sets.

Data breach: an unauthorized release of data either through hacking or by accident

Data linking: the act of combining two data sets into a larger data set

Data set: a collection of data that has been gathered using the same criteria

Data Steward: a designated official responsible with approving or denying data access requests

De-identified data: data where the personal information of the individuals have been removed


E


F


G

Genomic data: derived data about specific aspects of human biology


H


I


J


K


L

Licensure / registry data: Information about specified groups for regulatory or monitoring purposes (e.g. Vital Statistics, professional regulatory bodies such as College of Physicians, cancer registries)

Linked data: a large data set that combines two or more data sets


M


N


O


P

Personal data: data that can be associated to an individual

Privacy: the state or ability to remain free from observation if one chooses

Private enterprises: any privately-owned business or entity, such as a corporation, union, or club.

Privately collected data: any data that is collected by a private enterprise

Public bodies: provincial or federal organizations, such as Ministries, agencies, and hospitals.

Public deliberation: a public deliberation is a community discussion on issues that affect members of the public. It is a democratic process that includes citizens, as well as policy makers and experts. The results of a public deliberation can inform important policy decisions.

Publicly collected data: any data that is collected by a public body or an academic


Q

Qualitative data: data that describe rather than measure (e.g., favourite colour, preferred coffee type)

Quantitative data: data that define and measure, such as height and weight


R

Research: the systematic investigation into and study of materials and sources in order to establish facts and reach new conclusions


S

Secondary use of data: studying data for another purpose for which it was originally intended

Survey data: information collected directly from and about individuals or groups

Surveillance data: data that exists about individuals in the context of everyday life, e.g. CCTV video capture, Fitbit, web activity, GPS tracking)


T

Trusted Third Party for Linkage (TTPL) Refers to an independent, neutral body that does not have stewardship over the data being linked, as referenced in the September 2005 Canadian Institute for Health Research’s Privacy Best Practices (http://www.cihr-irsc.gc.ca/e/29072.html).  Population Data BC is such a TTPL. 


U

University Shall mean the university at which the functions or activities are undertaken and enforced.


V

Video Surveillance

Refers to the use of cameras and associated technologies to create recorded images of physical activity.


W


X


Y


Z


Page last revised: January 30, 2018