Power of Population Data Science Webinar - Lessons learned: It takes a village to understand inter-sectoral care using administrative databases across jurisdictions
All sessions will be delivered live and online via the Gotowebinar system.
Can’t attend the live session? This presentation will be recorded and posted on the PopData's YouTube channel and the International Journal of Population Data Science (IJPDS) website for future reference. We recommend you register for the presentations of your choice so we can send you a link to the latest recorded sessions as they are available.
The Canadian Team to Improve Community-Based Cancer Care along the Continuum (CanIMPACT) is a pan-Canadian group of researchers, primary care providers (PCPs), cancer specialists, patients and caregivers. The team members have expertise in epidemiology, biostatistics, knowledge translation, qualitative methods, and community-based pragmatic trials. CanIMPACT is supported through a grant from the Canadian Institutes of Health Research, and is led by Dr. Eva Grunfeld at the University of Toronto. The goal of CanIMPACT is to identify factors associated with poor continuity and coordination of cancer care in seven provinces, engage patients and caregivers, and develop an intervention aimed at improving care coordination for patients with cancer.
The CanIMPACT program of research is divided into two phases. In Phase 1, we conducted mixed methods research including: analysis of administrative health data; qualitative interviews with cancer survivors, PCPs, and cancer specialists; focus groups with primary care teams focusing on personalized genomic cancer medicine; an environmental scan and systematic review of initiatives designed to improve care integration; and the development of two synthesis maps as knowledge translation tools. In Phase 2, we are testing two online interventions to address some of the gaps in cancer care that were identified in the Phase 1 research.
The Population Data Science webinar will focus on the work of the administrative health data group, which conducted analyses in five provinces: British Columbia, Alberta, Manitoba, Ontario and Nova Scotia. Topics covered will include:
- The scope and aim of the CanIMPACT research program
- Key findings across participating jurisdictions
- Lessons learned related to the challenges of conducting multijurisdictional administrative health data research, and
- Knowledge translation activities
Dr. Patti Groome is an epidemiologist, Senior Scientist in the Division of Cancer Care and Epidemiology at the Queen’s Cancer Research Institute, and a Professor in the Department of Public Health Sciences at Queen’s University in Kingston. Her research involves the delivery of health services to persons with cancer most recently with a focus on the problem of a late cancer diagnosis. Groome and her team use linked administrative data to quantify how long it takes cancer patients to be diagnosed and what kinds of healthcare encounters and tests occur during that time. They are also interested in identifying risk factors for a long diagnostic interval with a view to improving that aspect of cancer care. Dr. Groome co-chairs the Administrative Data Subgroup of the Canadian Team to Improve Community-Based Cancer Care along the Continuum (CanIMPACT) Team. That subgroup has been comparing the quality of breast cancer care for patients in five Canadian provinces during the diagnosis, treatment, and post-treatment phases of care, overall and among vulnerable subgroups with a special focus on the interface between primary and cancer care. Dr. Groome’s research has been funded by the Canadian Institutes of Health Research, the Canadian Cancer Society, the Canadian Foundation for Innovation, the Ontario Innovation Trust and the OICR/CCO Health Services Research Program.
Mary McBride recently retired from her position as a Distinguished Scientist with BC Cancer in Vancouver. Mary is a Clinical Professor in the School of Population and Public Health at the University of British Columbia. Her research includes epidemiologic, clinical, and health system perspectives on cancer outcomes and cancer care, including quality of oncology and primary care for cancer patients throughout the cancer care trajectory, from screening to survivorship. She is an expert on record linkage methodology and use of linked population-based registry, clinical, and administrative datasets. She oversees two major research programs using linked datasets, following long-term outcomes and the care experience of BC cohorts of young people diagnosed with cancer, and women diagnosed with breast cancer. These initiatives operate from discovery (risks and predictors of patient and care outcomes), to impact on care (healthcare utilization, quality, and predictors of healthcare need), to policy and practice change (models of care to support quality care). As part of the Administrative Data Subgroup of the Canadian Team to Improve Community-Based Cancer Care along the Continuum (CanIMPACT) Team, she has examined quality of care during the diagnosis, treatment, and post-treatment phases of care, overall and among vulnerable subgroups, among BC women diagnosed with breast cancer. Her recent research has been funded by the Canadian Institutes of Health Research and the Canadian Centre for Applied Research in Cancer Control, funded by the Canadian Cancer Society.
Cynthia Kendell is a Project Coordinator/Research Associate with the Cancer Outcomes Research Program, at the Nova Scotia Health Authority in Halifax. Her research areas include cancer health services, knowledge translation, frailty, and advance care planning. During her time with the Cancer Outcomes Research Program, Cynthia has worked on a variety of projects involving the use of linked administrative health data and become increasingly interested in privacy, research governance, and data access. Cynthia is currently a PhD candidate in the Interdisciplinary PhD Program at Dalhousie University where she is studying variations in data access across Canadian jurisdictions.
Dr. Kathleen Decker is a Scientist in the Research Institute of Oncology and Hematology and the Senior Epidemiologist in the Department of Epidemiology at CancerCare Manitoba. Kathleen is also an Assistant Professor in the Department of Community Health Sciences, Max Rady College of Medicine, Rady Faculty of Health Sciences at the University of Manitoba in Winnipeg, Manitoba. She is also the Chair of the Pan-Canadian Cervical Cancer Screening Network. Her program of research focuses on cancer screening and early detection, cancer epidemiology, and population-based cancer research. The goal of her research is to generate new knowledge and evidence-based solutions to improve health outcomes, reduce inequities, and optimize health system performance and sustainability in cancer control.