Care coordination among survivors of childhood, adolescent and young adult cancer: patient sharing, healthcare utilization, quality of care, and cost

Project number: 
17-150
Approval date: 
Monday, October 30, 2017
Principal Investigator: 
Kaal,(Katrin) Julia
Institution: 
University of British Columbia (UBC)
Funding Agency: 
Not Available
Datasets requested: 
Medical Services Plan (BC Ministry of Health)
Consolidation file (BC Ministry of Health)
bc cancer-external
Consolidation - demographic (Ministry of Health)
Research objective: 

Research Aims:
The proposed project has four primary research questions:
1. What is the level of care density among survivors of childhood, adolescent, and young adult cancer?
2. What is the association of care density with health care utilization for survivors of childhood, adolescent, and young adult cancer?
3. What is the association of care density with quality of care for survivors of childhood, adolescent, and young adult cancer?
4. What is the association of care density with cost of care for survivors of childhood, adolescent, and young adult cancer?

Secondary research questions are:
1. What is the effect of sociodemographic (e.g., sex, attained age, SES), clinical (e.g., type of cancer, type of treatment), or health systems (urban/rural, regional) parameters on care density and its impacts (health care utilization, quality of care, costs of care)?
2. What is the relationship between time since diagnosis and care density of survivors of childhood, adolescent, and young adult cancer and related health outcomes?

The hypotheses associated with these research questions are:
1. A higher level of care density is hypothesized to be associated with lower health care utilization for survivors of childhood, adolescent, and young adult cancer.
2. A higher level of care density is hypothesized to be associated with better quality of care for survivors of childhood, adolescent, and young adult cancer.
3. A higher level of care density is hypothesized to be associated with lower cost of care for survivors of childhood, adolescent, and young adult cancer.
4. The level of care density is hypothesized to vary among subgroups, with lower care density among vulnerable and underserved groups.
5. The relationship between levels of care density, time since diagnosis, and related health outcomes are hypothesized to be associated with each other (i.e., time since diagnosis moderates the relationship between care density and related health outcomes).


Page last revised: December 5, 2017