Understanding Stress Pathways Among Caregivers and Siblings of Children who have a Developmental Disability in B.C.

Project number: 
15-100
Approval date: 
Tuesday, August 4, 2015
Principal Investigator: 
Marquis,Sandra
Institution: 
University of Victoria (UVIC)
Funding Agency: 
Not Available
Datasets requested: 
Hospital Separations (BC Ministry of Health)
consolidation - census geocodes
ACG Case Mix Group (Johns Hopkins University)
MSP Registration & Premium Billing(BC Ministry of Health)
Consolidation - demographic (Ministry of Health)
Income band (Statistics Canada)
Medical Services Plan (BC Ministry of Health)
Consolidation registry (Ministry of Health)
Research objective: 

Research Question #1

What are the health outcomes of being a caregiver of a child who has a developmental disability? Health outcomes of caregivers will be measured by type, number and severity of diagnoses, timing of diagnoses and health care usage measures. Caregivers of children with a DD will be compared to caregivers of children who do not have a DD. Variables to be considered are: type and severity of the diagnosis of the child with the DD, number of children in the family diagnosed with a DD, family income, geographical location, sex of the child with a DD, age of the child with a DD, age of the caregiver, sex of the caregiver, marital stability of the caregivers, family size, the effect of health of mother on father's health, the effect of health of father on mother's health.

Null Hypotheses: there is no difference in health outcomes between caregivers of a child with a DD and caregivers of a child who does not have a DD.

Research Question #2

What are the health outcomes of being a sibling of a child who has a developmental disability? Health outcomes of siblings will be measured by type, number and severity of diagnoses, timing of diagnoses and health care usage measures. Siblings of children with a DD will be compared to siblings of children who do not have a DD. Variables to be considered are: type and severity of the diagnosis of the child with the DD, number of children in the family diagnosed with a DD, family income, geographical location, sex of the child with a DD, age of the child with a DD, marital stability of the caregivers, family size, sex of the sibling, age of the sibling, birth order of children, birth spacing of children, the effect of health of mother on sibling's health, the effect of health of father on sibling's health.

Null Hypotheses: there is no difference in health outcomes between siblings of a child with a DD and siblings of a child who does not have a DD.

Publications: 

Journal Publication

  • Estimating the Prevalence of Children who have a Developmental Disability and Live in the Province of British Columbia - article published in the Journal on Developmental Disabilities (2018) 23(3), 46-56

Academic thesis or dissertation

  • Marquis, Sandra (2018)The Health of Parents and Siblings of Children who have a Developmental Disability in British Columbia (dissertation

Presentation of research material (poster/seminar/lecture etc.)

  • Using Population Based Administrative Data to Study Families with Children who have a Developmental Disability. Presented at the 5th Health and Wellbeing in Children, Youth and Adults with Developmental Disabilities Conference. Nov. 16-18, 2016

Page last revised: September 2, 2019