The value of research using linked administrative data to improve population health is being increasingly recognised around the world.
There are many organisations involved in providing researchers with access to linked data, carrying out research using linked data and networks promoting the use of linked data.
The IPDLN facilitates communication between data linkage centres and users committed to the systematic application of data linkage to produce community benefit in the health and health-related domains. Visit their website for links to known administrative data linkage centres around the world.
Research centres and projects
Carex Canada - a national surveillance project that estimates the number of Canadians exposed to substances associated with cancer in workplace and community environments. These estimates provide significant support for targeting exposure reduction strategies and cancer prevention programs.
Child and Youth Data Laboratory (CYDL) - The Child and Youth Data Laboratory (CYDL) studies issues, policies and practices affecting Alberta's children, by linking and analyzing cross-government, administrative data. The products of the CYDL enable policy makers and service delivery organizations to make better decisions related to services to children, design of programs, allocation of resources and policy analysis and development.
The CYDL is managed by the Alberta Centre for Child, Family and Community Research (ACCFCR). The Alberta Centre for Child, Family and Community Research is a public-sector, innovative resource that develops and mobilizes priority research evidence into policy. Because children and their families in Alberta share fundamental needs with children living elsewhere, The Centre’s research has relevancy and impact that extends to outside of Alberta, thus making The Centre an innovative nexus for the most important issues for children.
Human Early Learning Partnership, University of British Columbia - Recognized as an international leader in the field of early child development, HELP’s research explores how different early life environments and experiences contribute to social inequalities in human development, from the earliest days through school and into adulthood.
Institute for Clinical Evaluative Services (ICES) - Since its inception in 1992, ICES has played a key role in providing unique scientific insights to help policymakers, managers, planners, practitioners and other researchers shape the future direction of the Ontario health care system.
Manitoba Centre for Health Policy - MCHP is a research unit in the University of Manitoba's Faculty of Medicine, Bannatyne Campus. About 60 people work at the Centre, including University researchers and graduate students, systems analysts and support staff. Researchers benefit from collaboration with peers across Canada, the United States, Europe and Australia.
School of Population and Public Health, University of British Columbia - Creating, sharing and applying knowledge to protect and improve well being and to promote equity in the health of people and communities in Canada and around the world.
Partnership for Work, Health and Safety - This partnership between WorkSafeBC and UBC addresses current and emerging issues of work-related health in BC by developing and promoting the use of routinely collected health and compensation data from multiple sources, via Population Data BC. Areas of expertise include surveillance of occupational disease and injury, policy and program evaluation, and data development. The data allows research to be conducted on the entire working-age population over a 25 year period, providing a unique and comprehensive portrait of the health and well being of BC’s workers.
UBC Centre for Health Services and Policy Research - Committed to making lasting advances to population health and health services in Canada as leaders of independent, policy relevant research, graduate training, and data resources.
Canadian Health Information Management Association (CHIMA) - The Canadian Health Information Management Association was founded in 1942 to provide a national forum for health information management professionals to share their expertise. Its federal charter was obtained in 1949. CHIMA represents more than 4,200 certified HIM professionals from across Canada. CHIMA is the certifying body for HIM programs in Canadian colleges and universities, and certifies HIM professionals through the Canadian College of Health Information Management. CHIMA’s overall vision is to advance the health care system as the change leader in health information management.
Canadian Public Health Association - Founded in 1910, the Canadian Public Health Association (CPHA) is the independent voice for public health in Canada with links to the international community.
Canadian Research Data Centre Network - Since 2000, the Canadian Research Data Centre Network (CRDCN), in partnership with Statistics Canada's Research Data Centre Program, has transformed quantitative social science research in Canada. In secure computer laboratories on university campuses across Canada, university, government and other approved researchers are able to analyse a vast array of social, economic and health data.
Canadian Society for Epidemiology and Biostatistics - A Canadian organization of professionals, founded in 1990, for the purpose of fostering epidemiological and biostatistical research and practice in Canada.
The BC Environmental and Occupational Health Research Network (BCEOHRN) - Improving research capacity through enabling inter-institutional collaboration and seed funding to develop innovative research ideas.
National Collaborating Centre for Environmental Health - The NCCEH is one of six centres created to foster linkages within the public health community. This centre focuses on the health risks associated with the physical environment and identifies evidence-based interventions to reduce those risks.
Public Health Association of British Columbia - PHABC is a voluntary, non-profit, non-government organization whose mission is to preserve and promote the public's health. The Association works toward this mission through its activities in disease and injury prevention, health promotion, health protection, and advocacy for healthy public policy.
Rural Health Services Research Network of BC - Supporting excellence in rural health services research by, for, and with rural communities, clinicians, and researchers.