Through the Research Agreement and Data Preparation Agreement, the Researcher agrees to all conditions of use set by the public body or bodies that retain stewardship of the data, which may include (but are not limited to) the following:
The Five SAFEs model is an internationally recognized framework for evaluating access to privacy-sensitive data. The basic premise of the model is that data access requests are evaluated against a set of five ‘risk’ (or access) dimensions:
In the early 1970s the predecessor to the Centre for Health Services and Policy Research (CHSPR) - UBC's Division of Health Services Research and Development - began to maintain and provide access to a rich variety of health-related data, by agreement with the BC Ministry of Health Services and other bodies.
The data access considerations contained within the Research Data Access Framework (RDAF) build on data access documents from other local, national and international institutions, including the “Data Access Policy” that governed access to data from the BC Linked Health Database (BCLHD) from 1996 through 2009.
Population Data BC (PopData) holds population-wide, individual-level data to develop linkages among these data, and to support access to these data for approved research purposes.
PopData is authorized to receive, store, manage, manipulate and further disclose data through Information Sharing Agreements with data providers, as outlined in PopData’s Privacy Impact Assessment. PopData serves as a facilitating and coordinating third party for the creation of this resource for the research community.
Data access has been approved for a study which aims to help young women with cancer to make informed decisions on their treatment as it relates to their childbearing future.
Survival analysis is interested in the study of the time until the occurrence of an event of interest (e.g., time to death). A competing risk is an event whose occurrence precludes the occurrence of the primary event of interest.
Electronic medical records (EMRs) were originally designed to facilitate clinical decision making by systematizing the collection of patient health information and generation of documentation in real-time. The widespread adoption of EMRs in health systems has led to unprecedented availability of big health data, which has enabled new research activities targeting precision medicine and precision
Rheumatoid arthritis is an autoimmune disease where the body's immune system mistakenly attacks healthy tissue instead of foreign invaders, such as bacteria. This causes inflammation, which leads to symptoms such as red, swollen and painful joints, according to the Arthritis Foundation.
Universal full day kindergarten will be implemented in British Columbia over the next two years.
A study by The Child and Youth Development Trajectory Research Unit at the University of British Columbia linked data to assess the long term impact of full day kindergarten.
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