Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort
This webinar is part of the Power of Population Data Science Series
In longitudinal health research, combining the richness of cohort data to the extensiveness of routine data opens up new possibilities, providing information not available from one data source alone. In this study, we set out to extend information from a longitudinal birth cohort study by linking to the cohort child’s routine primary and secondary health care data.
Sharing linked data sets for research: Results from a deliberative public engagement event in British Columbia, Canada
This webinar is part of the Power of Population Data Science Series
Information is increasingly digitized, and researchers desire access to an increasing variety and depth of data to answers questions that can serve the public good. This talk will describe the methods and results of a public deliberation event held in April 2018 on the acceptability of sharing of linked data for research. The event brought together 23 members of the public over two weekends.
Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research
This webinar is part of the Power of Population Data Science Series
Data-intensive health research is a fast moving field in which public involvement and engagement (PI&E) is essential for developing socially acceptable and ethically robust processes and ensuring a social license for research practices. Nevertheless while some consensus is emerging around the importance of PI&E, commitments and practices are varied.
The Good, the Bad, the Clunky: Improving the Use of Administrative Data for Research
- Read more about The Good, the Bad, the Clunky: Improving the Use of Administrative Data for Research
This webinar is part of the Power of Population Data Science Series
Administrative data arising via the operation of public service delivery systems hold great benefits for citizens and society providing they can be made available for research in a safe, socially-acceptable way. In recognition of this potential, the UK Administrative Data Research Network (ADRN) was established in 2013 to enable new research for public benefit.
Family matters: High school graduation and sibling influence
This webinar is part of the Power of Population Data Science Series
The use of sibling designs in epidemiologic studies has increased significantly over the past few decades. Identifying siblings allow us to examine how the outcomes of an older sibling may affect those of younger siblings, and to adjust for unmeasured confounding.
Power of Population Data Science Webinar Series
This webinar series highlights the value of data linkage and related data-intensive analytics by profiling some of the most recent International Journal of Population Data Science (IJPDS) publications by national and international Population Data Scientists
Challenges in accessing routinely collected data from multiple providers in the UK for primary studies: Managing the morass
This webinar is part of the Power of Population Data Science Series
Researchers are increasingly using routinely collected data in addition to, or instead of, data collected using other methods. The UK government continues to invest in research centres to encourage use of these data, and trials and cohort studies utilise data linkage methods in the follow up of participants.
A Pan-Canadian Data Resource for Monitoring Child Developmental Health: The Canadian Neighbourhoods and Early Child Development (CanNECD) Database
This webinar is part of the Power of Population Data Science Series
The Early Development Instrument (EDI) is a measure of children’s developmental health at school entry, collected for populations of children in Canada at regular intervals in many jurisdictions since the early 2000s. Today, the EDI data collected represent a unique, population-level database reflecting early child development in the country.
The Canadian Chronic Disease Surveillance System: A model for collaborative surveillance
This webinar is part of the Power of Population Data Science Series
Chronic diseases have a major impact on populations and healthcare systems worldwide. Administrative health data are an ideal resource for chronic disease surveillance because they are population-based and routinely collected. For multi-jurisdictional surveillance, a distributed model is advantageous because it does not require individual-level data to be shared across jurisdictional boundaries.
Testimonial - PHDA, Jennifer McConnell
- How did you learn about the program and what motivated you to enroll?
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I learned about the PHDA program from the Director of the Social Dimensions of Health while I was taking the program at UVic. I was interested in the PHDA courses as a way to expand my skill set, enhance my knowledge of statistical software programs and gain practical skills to assist me with my PhD dissertation.
University of British Columbia, 201-2206 East Mall, Vancouver BC V6T 1Z3
Health Data Research Network Canada (HDRN) member
International Population Data Linkage Network (IPDLN) member
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